With a quick glance, he knew that something was wrong. After three long months of constant blood work, a kidney ultrasound and a kidney biopsy, I was diagnosed with Secondary FSGS, meaning that something else has caused my kidneys to fail.
To make it worse, my nephrologist reviewed my blood results as far back as I was able to provide, and he determined that I had FSGS for at least five years.
He also ignored the amount of protein I was spilling which was about 1 gram per day. Unfamiliar with the abnormal readings, I looked up the abnormalities online and realized that those results had to do with my kidney function.
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It was hard for me to come around and accept that this was my reality.
It took a while for me to reach the stage of acceptance, but once I was to that point I had been feeling better. In the summer of 2010 I had started dealing with sudden stomach problems.
Update on Heather I was diagnosed with FSGS at age 19. I was able to stay off dialysis for 22 years by eating healthy and by keeping my blood pressure under control. He put me on iron pills for three months with no follow up needed.
17 years ago I gave birth to my Son 6 weeks early due to my blood pressure being so high but he was healthy! For the next four years I always felt like something was off, but could not pinpoint what that feeling was. I gradually started to lose weight (already being on the thin side), and was feeling extreme fatigue.
I thought these were symptoms of kidney disease which is why I ignored them for so long.
These problems continued through the first of the year and it took me missing three days of work to finally realize I needed to go see another doctor.It seems as though I may be getting closer to the answer that I have been looking for. Untreated celiac disease can cause a mess of damage to the human body, including damage to other organ systems. I will never get a definite answer, but I do think they are somehow related considering having one autoimmune disease puts a person at risk for others.I have now been eating gluten free for about four months and am feeling much better!I went back to the same doctor, had some more blood work done, and he continued to treat me for anemia.My doctor had crossed out the abnormal levels and wrote “OK” by them.: At age 19, I went to the ER due to a major headache that would not go away.